Trusted Information Creators

PIF TICK Trusted Information Creators have to show they meet 10 key steps for producing health information.

PIF TICK logo featuring a blue outlined oval box with the words "Trusted Information Creator" and a large green check mark overlapping the box. Below is the text "Patient Information Forum".

Brain and nervous system

PIF TICK certified organisations and individuals

Alzheimer's Research UK, 'for a cure' written in an orange square.

Alzheimer’s Research UK

Information about dementia, including translated materials and updates about dementia research.

Visit the Alzheimer’s Research UK website
Alzheimer's Society logo with a blue forget-me-not flower and the tagline 'It will take a society to beat dementia'

Alzheimer’s Society

A vital source of support and a powerful force for change for everyone affected by dementia.

Visit the Alzheimer’s Society website
brainstrust logo featuring the tagline “the brain cancer people” and a profile of a human head incorporated into the text.

Brainstrust

Personalised support and resources to help people with a brain tumour and their loved ones live the life they want after diagnosis.

Visit the Brainstrust website
The logo features the word "CEREBRA" with a yellow starburst above it and the tagline "Working wonders for children with brain conditions.

Cerebra

Offering services that enrich the lives of children with brain conditions and support their families and carers.

Visit the Cerebra website
The text "Chest Heart & Stroke Scotland" with a stylised graphic of a heart and flower-like design

Chest Heart & Stroke Scotland

Scottish health charity supporting people with chest, heart and stroke conditions and Long Covid live life to the full.

Visit the Chest Heart & Stroke Scotland website
A picture of a red, green and blue brain. Encephalitis International, The brain inflammation non-profit.

Encephalitis International

A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain.

Visit the Encephalitis International website
Epilepsy Action in bold black and pink text

Epilepsy Action

Improving the lives of everyone affected by epilepsy through raising awareness and providing information and support.

Visit the Epilepsy Action website
Epilepsy Society logo with stylised purple text.

Epilepsy Society

Transforming the lives of people with epilepsy through world-leading research, advocacy, and care.

Visit the Epilepsy Society website
Growing Different logo with the tagline “Understanding Unique Minds” and three illustrated flowers.

Growing Different

A charity for children with complex neurodevelopmental differences and their families.

Visit the Growing Different website
The text 'Meningitis now' in an orange circle

Meningitis Now

The UK’s largest meningitis charity offering support, funding research, and raising awareness.

Visit the Meningitis Now site
The Mikaere Foundation logo with green spiral symbol.

Mikaere Foundation

Supporting children living with Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.

Visit the Mikaere Foundation website
mnda, Motor Neurone Disease Association logo in blue and orange text

Motor Neurone Disease Association (MNDA)

Providing help to people with motor neurone disease (MND), their families and carers.

Visit the MNDA website
MS Society logo with orange triangle.

MS Society

Information and support for anyone affected by multiple sclerosis (MS), including information for carers.

Visit the MS Society website
Multiple System Atrophy Trust logo with abstract orange symbol.

Multiple System Atrophy Trust

Support for people affected by MSA, including email and telephone support and regional support groups.

Visit the Multiple System Atrophy Trust website
Logo for Parkinson’s UK, featuring a bold blue 'P' with a leaf design and dark blue text.

Parkinson’s UK

Parkinson’s UK supports people living with Parkinson’s, their family, friends and carers, and funds vital research.

Visit the Parkinson’s UK website
The Pituitary Foundation logo with a bold orange dot and navy blue text.

Pituitary Foundation

UK patient support organisation offering expert medical support and information on a range of diseases.

Visit the Pituitary Foundation website
PoTS UK logo with purple overlapping shapes, interwoven rings, 'PoTS UK' text with a heart in the 'O', and 'Postural Tachycardia Syndrome' below.

PoTS UK (Postural Tachycardia Syndrome)

Help and support for those affected by postural tachycardia syndrome, including information for healthcare professionals.

Visit the PoTS UK website
A gradient spiral design in blue and pink, alongside the organization's name and tagline 'Supporting • Informing • Advocating' in purple and teal text.

Spinal Muscular Atrophy UK

Information about Spinal Muscular Atrophy (SMA) care, management, treatments and daily living, alongside support.

Visit the Spinal Muscular Atrophy UK website
The Migraine Trust in blue text

The Migraine Trust

Information about migraine and its management is available via its website, support service and events.

Visit the Migraine Trust website
a turquoise 'Y' with a circular speech bubble in a purple circle, next to the text 'Young Epilepsy' in purple.

Young Epilepsy

Transforming the lives of children and young people with epilepsy.

Visit the Young Epilepsy website

Resources

The front cover of the aphasia-friendly guide to cholesterol. It features illustrations of cholesterol in the blood.

Booklet: Cholesterol – An Aphasia Friendly Guide

Around 1 in 3 people who have had a stroke experience aphasia. Having high levels of “bad” cholesterol in your blood can increase the risk of developing heart disease or having another stroke. This guide includes information about what cholesterol is, why too much is harmful, and how cholesterol levels can be managed.

Download the aphasia friendly guide on the Chest Heart & Stroke Scotland website here
The front cover of the Kennedy's disease booklet

Booklet: Kennedy’s disease

Kennedy’s disease is a rare disorder of motor neurones, caused by genetic mutation. This condition can affect women, but symptoms are more severe for men. The Motor Neurone Disease Association also supports those affected by Kennedy’s disease.

Get the booklet on Kennedy's disease on the MND Association website here

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