Trusted Information Creators
PIF TICK Trusted Information Creators have to show they meet 10 key steps for producing health information.
Brain and nervous system
PIF TICK certified organisations and individuals

Alzheimer’s Research UK
Information about dementia, including translated materials and updates about dementia research.
Visit the Alzheimer’s Research UK website
Alzheimer’s Society
A vital source of support and a powerful force for change for everyone affected by dementia.
Visit the Alzheimer’s Society website
Brainstrust
Personalised support and resources to help people with a brain tumour and their loved ones live the life they want after diagnosis.
Visit the Brainstrust website
Cerebra
Offering services that enrich the lives of children with brain conditions and support their families and carers.
Visit the Cerebra website
Chest Heart & Stroke Scotland
Scottish health charity supporting people with chest, heart and stroke conditions and Long Covid live life to the full.
Visit the Chest Heart & Stroke Scotland website
Encephalitis International
A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain.
Visit the Encephalitis International website
Epilepsy Action
Improving the lives of everyone affected by epilepsy through raising awareness and providing information and support.
Visit the Epilepsy Action website
Epilepsy Society
Transforming the lives of people with epilepsy through world-leading research, advocacy, and care.
Visit the Epilepsy Society website
Growing Different
A charity for children with complex neurodevelopmental differences and their families.
Visit the Growing Different website
Meningitis Now
The UK’s largest meningitis charity offering support, funding research, and raising awareness.
Visit the Meningitis Now site
Mikaere Foundation
Supporting children living with Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.
Visit the Mikaere Foundation website
Motor Neurone Disease Association (MNDA)
Providing help to people with motor neurone disease (MND), their families and carers.
Visit the MNDA website
MS Society
Information and support for anyone affected by multiple sclerosis (MS), including information for carers.
Visit the MS Society website
Multiple System Atrophy Trust
Support for people affected by MSA, including email and telephone support and regional support groups.
Visit the Multiple System Atrophy Trust website
Parkinson’s UK
Parkinson’s UK supports people living with Parkinson’s, their family, friends and carers, and funds vital research.
Visit the Parkinson’s UK website
Pituitary Foundation
UK patient support organisation offering expert medical support and information on a range of diseases.
Visit the Pituitary Foundation website
PoTS UK (Postural Tachycardia Syndrome)
Help and support for those affected by postural tachycardia syndrome, including information for healthcare professionals.
Visit the PoTS UK website
Spinal Muscular Atrophy UK
Information about Spinal Muscular Atrophy (SMA) care, management, treatments and daily living, alongside support.
Visit the Spinal Muscular Atrophy UK website
The Migraine Trust
Information about migraine and its management is available via its website, support service and events.
Visit the Migraine Trust website
Young Epilepsy
Transforming the lives of children and young people with epilepsy.
Visit the Young Epilepsy websiteResources

Booklet: Cholesterol – An Aphasia Friendly Guide
Around 1 in 3 people who have had a stroke experience aphasia. Having high levels of “bad” cholesterol in your blood can increase the risk of developing heart disease or having another stroke. This guide includes information about what cholesterol is, why too much is harmful, and how cholesterol levels can be managed.
Download the aphasia friendly guide on the Chest Heart & Stroke Scotland website here
Booklet: Kennedy’s disease
Kennedy’s disease is a rare disorder of motor neurones, caused by genetic mutation. This condition can affect women, but symptoms are more severe for men. The Motor Neurone Disease Association also supports those affected by Kennedy’s disease.
Get the booklet on Kennedy's disease on the MND Association website hereLooking for another health topic?
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