Rare disease

Trusted Information Creators

PIF TICK Trusted Information Creators have to show they meet 10 key steps for producing health information.

Supporting children living with Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.

Providing help to people with motor neurone disease (MND), their families and carers.

Support for people affected by MSA, including email and telephone support and regional support groups.

Providing support and information to anyone affected by ocular melanoma while raising awareness of this rare cancer.

SRUK provides information, support services and funds vital research into Scleroderma and Raynaud’s.

We have certified health information across a huge range of conditions.